A day in the LEAF

LEAFAsheville, a center for arts and culture in the Southeast, has no shortage of events that enrich the soul. Fortunately, the local arts councils are also generous with these events, providing free tickets to those who could not otherwise afford them. Little Miss and I were lucky enough to score day tickets to the Lake Eden Arts Festival, or LEAF.

The clouds had burst the night before, and some rain lingered into Saturday morning, but it certainly didn’t extinguish the spirits of those on site. When we arrived, the event was in full swing, concert music spilling into the air outside the tents, a poetry slam tearing words from writers’ hearts, the aromas of hot garlic and smoky grills on the breeze. Brave (foolish?) younguns ziplined down into the lake, now a balmy 50 degrees. One bank of the lake was lined with the tents of those staying for the weekend, the other with the festival venue.

Kids ran everywhere, enjoying being kids, many barefoot, even in the squishy mud left from the rain the night before. Arts and crafts booths lined the perimeter, and soon Little Miss sported her own magenta and lilac African mask on a necklace.

The crowd was a burst of colors, so many dressed in flowing fabrics and “hippie” style. I fell in love immediately with the atmosphere, one which pervades Asheville as a whole, but seemed concentrated at the event in one glorious serving.

The headliner for the music scene was Macy Gray; she’s playing today, so we missed her, but we didn’t miss out. Saturday afternoon, we listened to bluegrass artist Sara Watkins, and as the evening wore on we were treated to a show by Cuban R&B/hiphop artist Danay Suarez.  She’s one of LEAF’s teachers in the visiting artists program at local Erwin High School. Though her concert was in Spanish, even her commentary to the audience, it was easy to decipher her meaning once she began to sing. The reggae and jazz beats reached into the soul and lifted it up.

Such a wild and wonderful combination of folks! We, of course, hunted down our family connections with Lucia and Kevin Barnes from Ultimate Ice Cream (did you know they have a CSA for ice cream???), then moved on. I loved the folks with this sign–good advice was free, and “bad” advice, you paid for. Sounds about right.

I’d had a rough weekend physically, so I had my cane and a folding cart with a camp chair, etc. that I finally set up outside the concert tent. Little Miss announced she wasn’t done exploring, so she spent the next few hours going from booth to booth, talking to vendors, learning about sound healing, swinging on some awesome hanging chairs, smelling incense and candles and much more.  I know it may not sound like much to most folks that a 17 year old worked a crowd, but for those who know the autism spectrum, and Little Miss, this means she overcame the noise of the music and crowd, went on her own, spoke with strangers to gather information, and experienced independence–knowing I was in one place where she could find me if she needed anything. Pretty awesome.

Mid-afternoon, LEAF was treated to a parade with a host of performers like those of Imagine Circus from Raleigh, sparkling and dancing in the sun. 

 

A glorious day, in the end, though I hadn’t expected it would be.  Something I’ve been working on, my expectations. When you have debilitating conditions, it’s so easy to slip into a niche where you automatically choose not to go out and do things for fear of increased pain or repercussions or inability. I’m trying now to “expect” that yes, there will be difficulties, but the experience is worth it once all is done.

And the lovely Danay Suarez proved my point. The beats of her music got me to my feet, moved me like a hurricane wind from her island. I didn’t look around to see what people were judging this old, fluffy lady, swaying her hips with one hand on her cane and one on her chair. I was simply the music.

We went to LEAF. Little Miss got to be a real teenager. And I danced. 🙂

 

 

Summer of the game show

One thing we learn about kids on the spectrum is that they tend to think about things in a very black/white manner. What they see in front of them is what is; if it’s not there, then they don’t imagine it.

For years, Little Miss was this way, and it was a constant point of “push” on my part. Why did someone act in a certain way? What would happen if…? That intuition part was just absent. I always got an irritated “I don’t know,” or more often, just ignored.

But this year, that door has cracked open, slowly at first, and then the possibilities have expanded–thanks to American game shows.

I have mostly considered game shows kind of a waste of time. After all, I wasn’t winning anything. Other than bragging rights to answering Jeopardy questions faster than the contestants (not necessarily a grand feat safe on one’s couch), there wasn’t much point.

wheelBut then we discovered Wheel of Fortune. it was on one night and I noticed Little Miss picking out patterns. She could identify “the” from one letter. Or other combinations. So we started purposefully watching until she could use her intuition to guess the letters. Eureka! Something beyond black and white!

Simultaneously, her ability to explain other things not seen fleshed out as well. Why did that man on the commercial ask people to behave a certain way? What does that girl feel, just by reading her face? Continued progress.

So while other parents, I’m sure, are chasing their kids outside, I’m setting up game shows. We watch The Price is Right, to guesstimate LMADthe prices and how much things might be worth. We watch Let’s Make a Deal to learn how to make decisions about things that can’t be seen. Should you trade a small box for a large box? Is bigger always better? Is money in the hand better than something you can’t see? She nearly always chooses the sure thing. Can’t argue with that.

This month, she’s kept her tablet handy, and every time there’s a trip to somewhere, she looks up where it is, identifies the flag and the location, and shares some facts with me about the country or city. If it’s a place she’s been, it brings recall of fun trips together. Otherwise, it’s a painless geography lesson.

asseenOf course, she’s still focused on having all the “As Seen on TV” gadgets, or anything that’s marked “New”. We’re working on that. But watching how she’s developed this summer, thanks to these entertaining lessons, I think we’ll get there.

Now I just have to get her a passport so she can go to these islands in the Caribbean. She’s insistent….

 

A brief interlude

IMGP2184I got a chance to travel to Florida this weekend to a friend’s wedding, a long-time compatriot from my newspaper days. She was the matron of honor at my second wedding (or third, depending on how you count it), and I’m the godmother of her first son. That being said, we haven’t been closely in touch for years, though we do manage to have a face-to-face at least once every couple of years.

Florida is beautiful and sunny in May, though the temperatures were considerably higher than I was used to, after a long winter in the IMGP2180frozen Northlands. The wedding itself took place on the beach in Melbourne. Both the bride and groom wore white–before Memorial Day! *fans self*  Most of my lady friends in the South would have fainted dead away. It was short and sweet, and the view was delightful. The ceremony was followed by a small but energetic reception with some of the best food I’ve had in awhile–jerk IMGP2181chicken, reggae shrimp and this lovely cake:

I also fit in a trip to my dear friend Edde’s in Fort Pierce, where we had lovely weather except for the last night, when IMGP2190some serious dark clouds rolled in over the ocean, dragging thunder and lightning with them. But we still had a nice visit. She was feeling a good deal better than she had been in December, when last we visited, so that was something to be grateful for.

Little Miss spent the weekend with her dad, which I hope did them both some good. Certainly a little “me” time was appreciated. And of course, nothing says Florida like this:IMGP2172

Not something you see every day….

 

 

A drive in the clouds

Driving back this week from Asheville, Little Miss and I experienced a chill, ethereal world that feathered off into the mountains on all sides.

IMGP2138IMGP2141Whether it was the blue hills of the southern Smokies or the pine-lined slopes of West Virginia, the world seemed confined to a narrow band of highway, and not much more.

Granted, we were mostly just trying not to get blown off the road by semis roaring past in the rain; but it was beautiful.

We did stop at the New River Gorge to get her National Parks Passport stamped, and took some pictures of the valley and river far below the visitors’ center.

We have become fast traveling companions, she and I, since we’re on our own now. She reads maps, tells me about the birds of the regions, and on this trip, insisted on using her own money to buy snacks for both of us. It was a delightful observation of her empathy and outlook for others.

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At nearly sixteen, she has come a very long way from the time I first began this blog. Then I didn’t even know the extent of the journey that awaited us. Some years we endured forty hours a week or more of therapy. More recently, a constant push to make every moment a teachable one suffices. She’s become a conversationalist, even with her peers. Perhaps she’s not the most stimulating passenger on a long route, but I’ve learned over the years to scale back expectations and appreciate even the small things.

It’s enough.

And that’s all that matters.

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Snakes on a train

trainI’d counted on our cross-country AMTRAK trip to be an adventure, one like I’d never experienced. Certainly the delays and other foul-ups on the behalf of the train company added extra layers to the “adventure” I’d never expected, but not all of them were bad. Exactly.

Because of a ticket snafu, we ended up for one overnight in the coach section. I had as seatmate an exchange student who buried herself under a plush white winter coat and slept for nine hours. Little Miss had a Christian woman with two bags of newly-purchased religious books and an addiction to straight solitaire on her tablet. Across the way was a tall, middle-aged gentleman with a black knit cap he kept pulled down tightly, who dug out a shiny new tan gabardine vest half way through the trip and put it on, looking like he felt like a million bucks.

Then there was the mother and teenage son from Nebraska who alternately cuddled and said I love you and then split, with the boy disappearing for twenty minutes at a time claiming he hated her.
But the ones that interested me most came to my attention later in the evening, after the lights were dimmed and people started falling asleep. I never thought to look at the first one, especially after I heard what he was saying.

I know, I know. I’ll have to go to the Greyhound station in Texas to get them. I couldn’t help it…I didn’t want to fight him…Yeah. Yeah. Punk got in my face…No, I’m on the train. I just bailed as soon as I could. Figure maybe they’ll chase the bags. Yeah. Yeah I’m all right. Fixed myself up in the john…Dunno what’ll happen now. Tell Richie… yeah, you know what to tell him. I’ll call…

Made me wonder if I should even close my eyes.

Then the middle-aged black man behind me started talking in succession on his phone to a couple of different people. One was a buddy, I think the second was the woman he’d just run out on.

No, baby, I couldn’t just sit there and listen to you dump on me all day about how I can’t do this, and I can’t do that…No, I didn’t tell you I was going. You’d just discourage me. You always discourage me—I know what I need to do. Don’t tell me what I need to do!

 I could hear her voice, though not her words, screeching back at him. Then he went off on a tirade very similar to Samuel L. Jackson’s in the movie of the similar name. With kids all around. At 3 a.m.

She hung up on him. I think. He switched to his buddy.

You know I’m going to California. I’m gonna fight. I can get matches there. She all about ‘what woman you run off with?’ and ‘how can I leave her?’ like I gonna be nothing without her….ha! That’s what I’m saying…I just can’t stay there. Can’t stay there. Nuh-uh. Sure I didn’t tell her. What I tell her first for? Then she just drag me down…

He went on to more “colorful” language, and I wondered why he thought the destruction of his three-year relationship wasn’t private business.  Or maybe if it’s only strangers around you, they don’t count as real people and you don’t have to show them some respect.

That was apparently the thought of some unknown miscreant who raided the suitcases stored in the common area below in the middle of the night. Even our AMTRAK car attendant lost her suitcase to this creep. She’s a nice lady. It made me feel bad for her. What the $^$%%# is wrong with people? Don’t get me started—Samuel L. might just have to move over and take a seat.

Too many snakes on this train.

Summer trip, Part Two

DSCN0611I’ll start with the view from our campsite at Curry Hammock State Park which was interesting in a number of ways, including how close we were to the beach, although pursuing the wildlife was much more fun. The park is “green”, so the restroom/shower facilities were all specially designed to fit with the local ecosystem.

The wildlife that popped up all around our campsite included some fabulous green iguanas like this guy:

igianaThe area, though is known for its blue crabs, which had hideyholes in the ground all over the place, several around the campsite itself. My daughter had the chance for prolonged conversation with some in the mornings, since she is an early riser, but I didn’t get to see so many.

Out time in the Keys sadly came to an end, and we headed north, where M and kids rented a car to head home, while we stayed in Satellite Beach with a friend of mine from the old newspaper days. It was two days full of fun, great food and success!new adventures.

Linda’s friend Rob was so generous with his time–one afternoon, he took the girls to his neighbors’ dock. Here’s the result–they each caught one!

success strikes againAnd yes, Mr. Redfish was delicious.

While we were there, we also had the chance to visit Kennedy Space Center. Yurie was excited to go there because of the rocketships and the history. Little Miss just went for one reason:

DSCN0637Yes. Angry Birds in Space. A whole building devoted to it, with a maze, and games, and the opportunity to sling birds at pictures of pigs. What says space travel more than that?

She actually did pay attention to several of the other exhibits (though she was still pretty obsessed with the Birds), as she demonstrated in later conversation. We took a bus ride out to see some of the outbuildings (including the one where Rob works!) and then came back to sit through a mock-up of a moon landing, which was cool (especially for those of us old enough to have watched it on live tv) .

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DSCN0632It was great reconnecting with Linda. We’ve both gone on to interesting lives, she as a counselor/teacher and me as an attorney/writer. But to take just a moment to relive those escapades as young writers–driving out onto the flight line at the air force base, checking out the drug hangouts in Florida City and nearly getting nabbed by the DEA–was awesome.

Then a sad day as we drove to Miami for Yurie to catch her plane home to Japan. We all survived the logistics of getting her to the airport during rush hour in Miami in a giant RV, AND of getting her multiple suitcases to the baggage carrier successfully (and the fact that the Miami Heat apparently won some sports event and we could have been marooned in city traffic for days, but we didn’t know it at the time). Goodbyes were tough. We’ll miss you, kid.  😦

The next leg of the trip was to Fort Pierce to visit another old friend of mine. We were both a little worse for wear for the years that had passed, and both dealing with chronic pain. But it didn’t stop my friend from being a delightful hostess, and we had a wonderful couple of days. Here she is with her friend going to a Mad Hatter party:

DSCN0642She looked great, and I’m so glad we stopped to see her. She lives in a beautiful condo overlooking the Atlantic Ocean, and invited me to come stay with her on a more permanent basis. Have to admit, I’m keeping that in the back of my mind. There are worse choices.

Little Miss was more delighted with the two miniature dogs living there:

DSCN0644They were cute, but definitely fonder of her than of me or other visitors.

Finally, north to Asheville, to complete our travels, to visit with K and her lovely partner L. We always have a good time with them, and they work so hard at creating a life together with L’s son, even though the state of North Carolina is much less than helpful in its acceptance of gay rights. We took the chance to do nothing a lot of the time, preparing for the long drive home, and took advantage of the KOA’s nice facilities, pool, park, etc. to just let go.

DSCN0654poolAnd of course we visited L’s new job–Asheville’s Ultimate Ice Cream shop. With unique flavors like goat cheese and bing cherry, chocolate and ginger, and even caramel with blue cheese (to DIE for…), it was an amazing tastefest. That was before we got the maple and bacon ice cream.

Yes, I said bacon.

It was unbelievable. Please put it on your bucket list. Right now. I’ll wait while you get a pen.

Hard to believe all this fit into 16 days, but it had to come to an end eventually. What didn’t come to an end, of course, was the pile of work waiting for me when I got back. But then that’s what the real world is about. Time to start dreaming of next year’s vacation!

 

 

Florida fun!

Travel is really one of my thrills, and I was thrilled indeed to make a pilgrimage to my old stomping grounds in south Florida last month, with some new experiences thrown in!

My traveling companions included the ever-faithful Little Miss, but we also had our exchange student Yurie, who packed DSCN0542and re-packed her belongings for her trip home at the end of the visit, and daughter M and her three children.
We missed the worst of the rain, but we did get the south Florida heat square in the face–after all my intervening years as a Yankee, I have to admit I was a bit of a wuss!

Also it was my first long solo trip at the helm of the RV, so I was a little stressed and intimidated by that for awhile, since I’ve been the only one who’s managed to run into something with it. BUT NOT THIS TIME! YAY!

 

We landed at Pensacola just long enough to pick up our passengers, then headed out to the Florida Caverns in Marianna. I sat with the cocker spaniel in the RV while the rest took the cave tour. Little Miss, though, will always remember how the tour guide showed the control panel with the switches for the lights and the one he said was for self-destruct. Apparently she screamed at him not to push that one, in a dead panic. Overall, not bad advice, but still…we do tend to take things literally. 🙂

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Then south to Naples, and east to Everglades City, where we took a trip on an Everglades airboat–something I’d always wanted to do but never had, while we lived there. I was thankful there were headphones for those with sensory issues, and it made it so easy to ask questions! We saw a manatee, some pelicans, and of course alligators:

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But I think we all were excited by the race through the mangroves–not exactly the tour of the “River of Grass” I’d envisioned, but still quite an adventure:DSCN0553

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Then it was on to the Florida Keys, where we’ve spent many happy weekends.

Camping was easy at the state parks, thanks to M, who’d made our reservations many months ago. We were joined, by fortunate coincidence, by daughter D, whose family happened to be going the same time we did, and though we all didn’t fit in the RV, we did camp next to each other at Bahia Honda (one of the most beautiful beaches in Florida) and we shared a big dinner one night, which was nice.DSCN0571

The water off those bridges in the Keys (even the Seven-Mile one!) is SO gorgeous, tones of blue, green and everything inbetween.

 

We took one day away from those wonderful beaches and went to Key West, where I researched an upcoming romance book with pirates. It’s always been one of my favorite places–we honeymooned there. Still as beautiful today:

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Here’s St. Paul’s Episcopal Church, which had a fabulous royal Poinciana tree blooming in front. DSCN0585

 

 

 

Also a giant banyan tree, where the roots grow down from the branches into the ground:

Of course we stopped at the Southernmost point in the continental United States:

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After a bit of shopping, we went to dinner at a Cuban restaurant with the whole gang:

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But the real beauty of the scenery was just to sit and take it in. Especially at the quiet points of the day, like this moment at Bahia Honda with Emma:

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More on the second half of the trip coming in Part II.  🙂