That headache time of year

No, I don’t mean allergy season, though that certainly would apply. I mean summer, and its attendant crisis-level situations about what to do when you have two working parents, special needs children, and services to arrange around family demands.

We’re all busy. Even without the challenges I know a lot of you parents have of getting kids back and forth to sporting practices and events, we have been run pretty ragged by the schedule of services we’ve received in years passed. (Sports are right out. For a number of reasons.)

The first year of our diagnosis we had to deal with TSS and social groups for two of the children, all provided by workers who didn’t drive. So we rushed here and there.

For several years thereafter, we had summer camp 35 miles away for the two kids with autism, and made the trip twice a day.

Ditto Boy was jealous the others had a special camp, of course, so he was signed up at the Y, so he had plenty of activities.

In addition to the weekday events, of course, we had to find time to have time away as a family, and also time to visit grandparents in South Carolina, so we had some respite. For the majority of the year, there is no respite, and with the way the Captain has been carrying on this spring, it’s hard to find anyone willing to take him, even for a short time.  So at 13, when he should theoretically be able to watch the others for an evening so we can go out, he’s the one of the three that needs a babysitter the most.

We found a relative who will keep the Captain for a month, but can’t do any transportation for the visit. So it looks like I’ll be driving to Montana and back (no way I could put that boy on an airplane alone!!) to drop him off, and hopefully a friend will be flying this direction at the end of the month and accompany him.  Two weeks out of my schedule just for 30 days of peace.

Trying to work around grandparents’ schedules is hard too. The schools are on different calendars; they start in early August, while we don’t go till September.  And with their need for continuing ed and so on, we are limited to a very small window–actually exactly the time that I had planned to drive the boy out.   Which would mean not only would the children miss out on a vacation across the US, but there would be no respite. But it at least frees up Little Miss for her ESY program.

So we regroup and regroup and regroup. And reach for the Excedrin.

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6 thoughts on “That headache time of year

  1. Wow, I marvel. That is a tough one.

    How do we get through it each year?

    It makes you want to support that year round school year, doesn’t it?

    Hang in there.

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  3. The local Y here has a newer summer camp “GRACE” Growth.Recognition.Achievement.Character.Encouragement. A camp for children with PDD or Autisim Spectrum Disorder ages 6-13. Also camp for ages 14 & up (highly functional children for social skills weeks). This camp was new to our Y last summer and while it may not help you NOW, it may be something that you can talk to the local Y there since you mentioned there is a lot of this need in your area. Just a thought for the future but it looks as if you may need the Excedrin still for this round of summer break!

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  5. Year round school is pretty successful out here in NV.

    And you would get to come and see me if you drove out. 🙂

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